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South Carolina Central Cancer Registry
Information for Researchers
SCCCR Data Release
In order to balance the principles of access and confidentiality, the SCCCR has classified the release of data collected under Section 44-35-30, SC Code of Laws, 1996. This classification scheme aims to promote the use of accurate cancer data, provide equal treatment of data requesters and data providers, expedite the release and process, and encourage the release of the broad spectrum of data elements without compromising confidentiality. The data release classifications include two categories: unrestricted data and restricted (confidential) data. Procedures are set in place for the release of both classifications of data. The SCCCR Data Release Protocol explains these procedures.
SCCCR Data Release Protocol (PDF-192KB)
Requests for Restricted Data
Researchers requesting the use of restricted or confidential data items (PDF-60KB) must complete the Research Request Application and submit the application to the SCCCR along with the following:
1. A list of the requested data items
2. Time frame for the requested data items
3. Study protocol
4. Intended uses of the data
5. Policies for the protection of the confidential data items
6. A confidentiality contract signed by the principal investigator
7. A detailed lisiting of the individuals who will have access to the data.
8. IRB approval from home institution (i.e. USC, MUSC, Palmetto health, etc.)
The application is then reviewed by the Surveillance Subcommittee of the Cancer Control Advisory Committee (CCACSS). The CCACSS forwards the documentation and its recommendation to the Department of Health and Environmental Control Institutional Review Board (DHEC IRB). Notification will be provided within six weeks from receipt of a completed application.
Requests for Unrestricted Data
Researchers requesting unrestricted or
non-confidential data items (PDF-60KB) should first visit
SCAN. The
SCAN data query system allows users to generate tables and maps
of South Carolina cancer mortality data. Cancer incidence data
will be added to SCAN in the near future. If the desired non-confidential
data is not available on SCAN, researchers should contact Catisha
Mosley at the SCCCR. Please include the following in your request:
Type of data requested (i.e. incidence, mortality)
Years requested (i.e. 1996-2004 incidence, 1990-2004 mortality)
Any other desired variables (i.e. age, race, stage at diagnosis - incidence only)
Reason for request
When the information is needed
Desired means of receiving the information (i.e. e-mail, fax, snail-mail)
Contact information: Name, title, company, address, phone, fax, e-mail
address
Catishia Mosley, MSPH
SC Central Cancer Registry
Department of Health and Environmental Control
810 Dutch Square Blvd., Ste. 220
Columbia, SC 29210
Phone # (803) 731-1419 Ext. 110
Fax # (803) 731-1455
E-mail: mosleycm@dhec.sc.gov
Abstracts of recent research activities using SCCCR data
are listed below.
South Carolina African-American Hereditary Prostate Cancer Study
The South Carolina African-American Hereditary Prostate Cancer Study will call all African-American men with prostate cancer who were diagnosed with prostate cancer at age 65 years or younger in order to identify men with several family members with prostate cancer. Men who have four or more family members with prostate cancer with three living will be asked to participate and donate blood to find the prostate cancer gene(s). Principal Investigator: Dr. Sally P. Weinrich, University of South Carolina, College of Nursing.
South Carolina Older Men's Health Study
The South Carolina Older Men's Health Study examines several factors that are associated with increased prostate cancer risk. It involves identifying all men living in the 15-county area of the state aged 65-79 who are diagnosed with prostate cancer within a certain time period. The men are interviewed, comparing their histories to those taken from randomly selected men without prostate cancer in the same counties. Principal Investigators: Dr. Ann Coker and Dr. Maureen Sanderson, University of South Carolina, School of Public Health.
If you have any questions or comments about the information on this page please contact: Catishia Mosley
Disclaimer
This page was last updated on June 28, 2007.
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